My trek to the top of Kilimanjaro is a small tribute to my son Madden and everyone with Angelman Syndrome. Those with AS work tirelessly every day to accomplish simple tasks that most of us surely take for granted like feeding themselves, standing and communicating. Madden lives a life harder than most, but you couldn’t tell by the smile on his face. He doesn’t waiver and he never quits. He’s my inspiration to try to climb Kilimanjaro.
If trekking up one of the tallest mountains in the world motivates someone to ask me, “Why are you doing this and what is Angelman syndrome?” then I’ve accomplished my goal. Trekking to the summit of Mount Kilimanjaro is for AS and the accomplishments my son Madden reaches every day.
Everyone of us have daily Summits we reach. These Summits 4 AS are everywhere but the top of a big mountain. These accomplishments can be inspiring, moving, and even quite funny. Please share your Summit 4 Angelman on Twitter/Facebook (#summit4angelman.) I hope we all find strength, motivation and escape from these stories of hard work, persistence and accomplishment. Even though we might not all know each other by name, these stories are as familiar to each one of us as a long lost friend. What’s your Summit?